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Establishment of Australia’s First Cystic Fibrosis Unit

The Federal Government has announced $65 Million in funding for Australia’s first dedicated Cystic Fibrosis Unit to be built in Sydney’s Westmead Health and Education Precinct.

The Cystic Fibrosis unit will be co-located within the hospital’s respiratory unit and contain:

  • A 16-bed inpatient unit with single rooms, including four isolation rooms
  • Specialist research zone
  • New consultation rooms
  • New work spaces for clinical staff
  • An upgraded outpatient service including day stay rooms for procedures and outpatient physiotherapy and respiratory testing.

This funding announcement has come off the back of two medication listings for Cystic Fibrosis on the PBS over the last two years. Orkambi® in 2018 costing $250,000 annually and Kalydeco® in 2017, costing $300,000 over the same period. Now costing $40.50 or $6.50 a script.

Cystic Fibrosis in considered the most common chronic illness affecting young Australian’s today.

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